ePBI-Vit
Electronic Patient Benefit Index Vitiligo
ePBI-Vit
Quick and easy assessment of treatment benefits
What is the ePBI-Vit?
The ePBI-Vit is a tool for patients and their doctors that records patients' subjective assessment of the benefits of their treatment. It is based on the Patient Benefit Index for Vitiligo (PBI-Vit) and helps to set treatment goals and then check whether these goals have been achieved or not over time. It includes questions that measure the extent to which patients feel that their quality of life and symptoms have improved as a result of the therapy. This assessment tool therefore provides important information about patient satisfaction and perceived benefits. It can also be used for quality assurance and joint decision-making. The ePBI-Vit is available as a mobile application for Android and iOS devices and as a web-based online tool.
Validation of questionnaire
paper version: yes digital version: no
How to use the ePBI-Vit
At the beginning of therapy, the patient completes a questionnaire about their treatment goals (PNQ: Patient Needs Questionnaire), consisting of 26 questions. On a 5-point scale ranging from “not at all” to “very much,” they rate how important the respective goals are to them or indicate whether they may not apply to them. At the end of therapy (or during its course), the patient completes the Patient Benefit Questionnaire (PBQ) and rates on a 5-point scale from “not at all” to “very much” the extent to which the treatment has helped to achieve the previously defined goals or whether they did not apply to them. The need prior to therapy (PNQ) and the benefit achieved through therapy (PBQ) are converted into a weighted index value, the Patient Benefit Index (PBI).
The total score ranges from 0 (no patient-relevant benefit) to 4 (maximum possible patient-relevant benefit).
Below is an example of the PBI calculation in four steps.
1) Importance of treatment goals
The following questions are designed to help us understand how important the goals listed below are to you personally in the current treatment of your vitiligo.
For each of the following statements, please indicate how important this treatment goal is to you. If a statement does not apply to you, e.g., because you are not experiencing any pain, please check “does not apply to me” in the right-hand column.
2) Benefits of treatment
Please enter here which treatment for vitiligo is currently being carried out (or has been carried out in the last 12 months):
Treatment: _________________ Since when?: ____________
O No treatment for vitiligo in the last 12 months (→ please continue on the next page!)
Please tick each of the following statements to indicate the extent to which the goals have already been achieved by the current treatment and thus the treatment has been beneficial for you. If a statement does not apply to you, e.g. because you did not experience any pain, please tick “not applicable” in the right-hand column.
3) Calculation of PBI
4) View the results (example)
More on this
Structure and areas of application of the Patient Benefit Index
The following versions of ePBI-Vit are available
The importance of measuring ePBI-Vit
The Patient Benefit Index is a tool for valid, standardized measurement of patient-relevant therapy benefits in accordance with the requirements of SGB V, GBA, and IQWiG. In addition to PBI-S, the standard version for skin diseases, 14 disease-specific versions have been developed to date. These include PBI-Vit for Vitiligo. The PBI supports efforts in outcomes and healthcare research to reflect the patient perspective in its entirety.
Features
USER-FRIENDLY
The intuitive and interactive design of the ePBI-Vit ensures that all questions are easy to understand, whether for physicians or patients.
QUICK
Save time with our online tool. Fill out the questionnaire and your PBI-Vit score will be calculated automatically.
RESULT FEEDBACK
On DermaValue, you not only receive your PBI-Vit score, but also learn what it means in terms of your treatment benefits.
MULTILINGUAL
The PBI is an established tool and available in several languages. Using it in your native language reduces language barriers and promotes understanding between doctor and patient.
ACCESSIBLE FROM ALL DEVICES
With DermaValue, the ePBI-Vit is always just a few clicks away. The application is available for PCs, tablets, smartphones, and other devices.
ENVIRONMENTALLY FRIENDLY
Protect the environment and save your patient data as PDF files for yourself and your doctors.
References
Validation:
Augustin, M., Gajur, A., Reich, C., Rustenbach, S. & Schaefer, I. (2008). Benefit Evaluation in Vitiligo Treatment: Development and Validation of a Patient-Defined Outcome Questionnaire. Dermatology, 217(2), 101–106. https://doi.org/10.1159/000128992
Definition:
Augustin, M., Radtke, M. A., Zschocke, I., Blome, C., Behechtnejad, J., Schäfer, I., Reusch, M., Mielke, V. & Rustenbach, S. J. (2009). The patient benefit index: a novel approach in patient-defined outcomes measurement for skin diseases. Archives Of Dermatological Research, 301(8), 561–571. https://doi.org/10.1007/s00403-009-0928-8
Blome, C. & Augustin, M. (2010). Evaluation des therapeutischen Nutzens aus Patientensicht: Der Patient Benefit Index (PBI) als Beispiel für zielorientierte Präferenz- und Outcome-Messung. Gesundheitsökonomie & Qualitätsmanagement, 15(05), 236–240. https://doi.org/10.1055/s-0029-1245662
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